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RYAN's Road
Posted on September 29, 2014

TSC Affects Each Person Differently

BY: BRENT LACKEY

TSC can affect many different parts of the body, including the brain, kidneys, heart, lungs and skin. Watch this clip to hear Brent discuss how TSC manifestations can vary from person to person. To help raise awareness of TSC, share this post on your Facebook or Twitter pages, and with family and friends.

RYAN's Road
Posted on September 24, 2014

Give It a Try!

BY: WHITNEY LACKEY

While competing in bocce at the USA Games in New Jersey, Whitney talks about what motivates her to compete in the Special Olympics and encourages others to give it a try. Feel free to reblog this post, or share it on your Facebook or Twitter pages and with families and friends, to inspire those impacted by TSC and help raise awareness.

RYAN's Road
Posted on August 18, 2014
A Father’s Perspective

BY: BRENT LACKEY

Our daughter Whitney was first diagnosed with TSC at two months old. At that time, we had never heard of the disease before and there was very little information or resources available. 

The first thing my wife Sharon did was run to the library to read about this rare and complex disease. Sharon helped our family become more informed about TSC manifestations, and the prognosis and management strategies available so we could all better understand how it would affect our daughter’s life. I truly admire my wife’s courage and commitment – it has made all the difference for Whitney and our family.

Being a part of Special Olympics has been an amazing journey for our family over the years and I encourage you to read an article published on Parents.com to learn more about our experiences: http://www.parents.com/blogs/parents-perspective/2014/06/13/the-parents-perspective/raising-awareness-through-the-usa-special-olympics. Feel free to pass this article along to your family and friends to help learn more about TSC and our journey.

A Father’s Perspective

BY: BRENT LACKEY

Our daughter Whitney was first diagnosed with TSC at two months old. At that time, we had never heard of the disease before and there was very little information or resources available.

The first thing my wife Sharon did was run to the library to read about this rare and complex disease. Sharon helped our family become more informed about TSC manifestations, and the prognosis and management strategies available so we could all better understand how it would affect our daughter’s life. I truly admire my wife’s courage and commitment – it has made all the difference for Whitney and our family.

Being a part of Special Olympics has been an amazing journey for our family over the years and I encourage you to read an article published on Parents.com to learn more about our experiences: http://www.parents.com/blogs/parents-perspective/2014/06/13/the-parents-perspective/raising-awareness-through-the-usa-special-olympics. Feel free to pass this article along to your family and friends to help learn more about TSC and our journey.

RYAN's Road
Posted on August 14, 2014

Thursday: Calling All Parents: Check Out This Article About Our Journey with TSC!

BY: SHARON LACKEY

I’m so excited to share a SheKnows.com article about our family’s journey with TSC and Whitney’s participation in the Special Olympics USA Games. Check it out: http://www.sheknows.com/parenting/articles/1040111/teen-competes-in-special-olympics-despite-genetic-condition.

Feel free to share this article with your family and friends to help raise awareness about TSC and to encourage those affected by TSC to participate in activities they are passionate (after checking with their doctors first).

RYAN's Road
Posted on August 13, 2014

Wednesday: We Did It!

BY: SHARON LACKEY

Whitney’s road to the 2014 Special Olympics USA Games has officially ended, and my husband, Brent and I could not be more proud of everything she has accomplished.

Whitney began participating in the Special Olympics because she loves all kinds of sports, but we never dreamed that one day Whitney would have the opportunity to compete at the National level. When Whitney was first diagnosed with TSC at the age of two months, the doctors told us that she would probably never walk or talk so you can imagine how proud we were to see her competing at the USA Games.

On top of her athletic achievements, it was a testament to Whitney’s growing independence to have her stay in the dorm rooms on her own and make many new friends during our trip. Of course she did all of this with her ever-positive attitude. Whitney has overcome so much to get to where she is today – she is our hero and she continues to inspire us every day.

RYAN's Road
Posted on August 11, 2014

Back Home in Tennessee!

BY: WHITNEY LACKEY

Now that I’m back home in Tennessee, I wanted to share a post to tell everyone about my trip to New Jersey for the USA Games. I’m so happy I had the chance to compete with all of the different athletes at the Games because I met so many people and made a lot of new friends!

One of the coolest parts of my trip was staying in the dorms with my teammates. The dorm rooms were at a school called Rider University and we stayed there without our parents. We were just like college kids! Plus, I was even in my local newspaper in Tennessee for playing bocce at the USA Games. Check it out here: http://www.lebanondemocrat.com/article/lebanon/425331. The article talks about my TSC and why Special Olympics is so fun for me!

Come back soon to see some videos from me and my family at the USA Games!!

RYAN's Road
Posted on June 23, 2014
Update on the USA Games!

BY: WHITNEY LACKEY

The Special Olympics USA Games just wrapped up so I wanted to share a quick update. The Games were really fun and I’m so glad I got to travel to NJ and represent Team Tennessee in bocce. There were so many people watching us play!! Check out this photo of me after the medal ceremony!

I took home the bronze medal in doubles and Team Tennessee took home the silver medal! I also competed in the singles competition and got fourth place! 

This was such a cool experience and I think people with TSC like me should think about participating in Special Olympics or taking part in other activities that make them happy. Of course, you have to make sure to visit your doctor regularly for check-ups but Special Olympics is one of my favorite things! 

I’m so proud of my team and all of the other Special Olympics athletes who competed at the USA Games, and can’t wait to compete in a Special Olympics event again soon!

Update on the USA Games!

BY: WHITNEY LACKEY

The Special Olympics USA Games just wrapped up so I wanted to share a quick update. The Games were really fun and I’m so glad I got to travel to NJ and represent Team Tennessee in bocce. There were so many people watching us play!! Check out this photo of me after the medal ceremony!

I took home the bronze medal in doubles and Team Tennessee took home the silver medal! I also competed in the singles competition and got fourth place!

This was such a cool experience and I think people with TSC like me should think about participating in Special Olympics or taking part in other activities that make them happy. Of course, you have to make sure to visit your doctor regularly for check-ups but Special Olympics is one of my favorite things!

I’m so proud of my team and all of the other Special Olympics athletes who competed at the USA Games, and can’t wait to compete in a Special Olympics event again soon!

RYAN's Road
Posted on June 20, 2014
Healthy Athletes Village

BY: SHARON LACKEY

Special Olympics USA Games are in full swing and today, we are here with Whitney at the Healthy Athletes Village, where Special Olympics athletes can receive free health screenings. At the Village, doctors are available to provide podiatry, hearing, optometry, dental, dietary and fitness screenings, and help educate athletes on healthy lifestyle choices and identify problems that may need additional follow up in a welcoming and fun environment. 

Regular checkups are especially important for people with TSC, such as Whitney, who require regular monitoring and screening by TSC specialists. To learn more about TSC, you can visit the Facing TSC website: http://www.tuberous-sclerosis.com/patient/children.jsp. 

Also feel free to reblog this post, or share it on your Facebook and Twitter pages to help spread awareness about the importance of monitoring and screening for people with TSC.

Healthy Athletes Village

BY: SHARON LACKEY

Special Olympics USA Games are in full swing and today, we are here with Whitney at the Healthy Athletes Village, where Special Olympics athletes can receive free health screenings. At the Village, doctors are available to provide podiatry, hearing, optometry, dental, dietary and fitness screenings, and help educate athletes on healthy lifestyle choices and identify problems that may need additional follow up in a welcoming and fun environment.

Regular checkups are especially important for people with TSC, such as Whitney, who require regular monitoring and screening by TSC specialists. To learn more about TSC, you can visit the Facing TSC website: http://www.tuberous-sclerosis.com/patient/children.jsp.

Also feel free to reblog this post, or share it on your Facebook and Twitter pages to help spread awareness about the importance of monitoring and screening for people with TSC.

RYAN's Road
Posted on June 17, 2014

Live from the USA Games!

BY: WHITNEY LACKEY

Hi everyone – its Whitney Lackey here, live from the Special Olympics USA Games in New Jersey! It was a long journey from Tennessee, but I’m so excited to finally be here!!

Here’s a photo of me playing bocce at the Games. So far, I’ve competed in doubles competitions – and Team Tennessee is doing great.

Check back for an update after the USA Games, and wish us good luck!

RYAN's Road
Posted on June 9, 2014

Monday: 1 week left!

BY: WHITNEY LACKEY

One week left until I compete in bocce at this year’s Special Olympics USA Games! The USA Games only happen once every four years!

Special Olympics has taught me to work really hard. I’ve been practicing a lot with Coach Melody and I also have had appointments with my TSC doctor to make sure I’m in the best possible shape for the games. One way my doctor makes sure I’m in the best possible shape is through a test called an ultrasound to look at my kidneys and check for any new or growing tumors. This is really important for young adults with TSC like me!

I can’t wait to show off my skills at the Special Olympics USA Games next week! I’ll keep you posted on how it all goes!